Strays

Jul. 16th, 2025 03:24 pm
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[personal profile] genderjumper
  • My depression has never NOT been situational.
  • My earliest ideations were tame compared to the Murphy's Law commentary that ran through my head.
  • My adolescent temper tantrums were undx meltdowns for a young autistic AMAB who couldn't reconcile his nascent sense of justice with the way the world interacted with him.
  • I was never outwardly vexed by not being allowed to play with dolls, but there was a tiny ping of sadness every time a commercial for one came on.
  • This is not mental health advice, just one person's experience
  • Global trauma affecting individ lives, from Reaganism to COVID to the surge of fascist technobros who want to shrink our population for easier control.
  • How embody joy when so disconnected & overwhelmed?

My "Type", v. 0.1

NSFW Aug. 4th, 2025 01:06 am
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genderjumper: cartoon giraffe, chewing greens, wearing cap & bells (Default)
[personal profile] genderjumper
I've been trying to keep one foot in academia (mostly LGBTQ+ caregiving and aging) and one in community health (COVID cautious, combatting health disparities), but increasingly I just want to support the powerful Disability Justice spaces that are emerging as a facilitator, capacity-builder, and networker. I'm terrible at policy/advocacy but engage with many other realms of cultural and political resistance. I maintain a small newsletter and would be happy to boost your virtual and CC events or help put on virtual events.

As a person, I'm a white genderfluid giant, anti-racist since adolescent (though ever-evolving), working class background with a first generation education (Tier 1 BA, state MA in Sociology with a Multicultural Women's and Gender Studies cert, and a Community Health Worker license), nonmonogamous for nearly 20 years (and low-key looking for ways to bridge that somehow).

My neurodivergent traits are often hidden because communication and relationships are longstanding specialized interests -- I'm like a daywalker -- and I've spent the past year uncertain where I fall along the spectrum from pre-disabled to disabled (thanks Long COVID and burnout).

I'm kind of bad at hobbies, but I stim by playing games on BoardGameArena (add me: GJtheUnlit) and make myself take breaks by reading comic strips and music bios or watching weird and wonderful things on streaming.

What Happens to a Meltdown Deferred?

Jul. 30th, 2025 12:22 am
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Recent patterns had me thinking that if I could get a good nap, or at worst an overnight rest, I'd bounce back from a meltdown relatively quickly and may even be able to fend one off.

But after the food problem yesterday, I never quite made it back to feeling myself today. And when another, smaller food concern emerged today, I started whimpering. Then I was confronted with a phobia and literally screamed out loud. The whole house had to come help me deal with it. 

Now I'm all worked up and I still haven't cried.

Is it still there, blurring my vision and sapping my energy? Or am I finally coming down from the summer hypomania about 2 weeks late?

Or does this week just really suck?

Counterpredisabilitarism

Jul. 28th, 2025 06:26 pm
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[personal profile] genderjumper

It's been over 10 years since I was diagnosed gluten-intolerant. I have what my nutritionist called "silent Celiac", in that my body doesn't really know gluten is bad for me; we just happened to catch it and confirm it after some irregular bloodwork. I don't have to sweat cross-contamination the way most Celiacs do; just avoid wheat and everything is fine.

But wheat is everywhere, as are other allergens new and established. I've spent a significant of the past decade relearning how to eat, how to plan, how to prepare, how to keep my dietary limitations from becoming others' problems.

But I've also spent a lot of that time exasperated, under-resourced, and falling apart when something doesn't go the way it needs to. When the backup plan falls through, or there is no backup plan. When one little detail throws everything out of balance.

And I'm just now starting to admit that this amount of effort just to be able to feed myself is a burden in my life, and that if it were easier to accommodate, my quality of life would be a lot better.

In other words, I'm finally starting to understand why Celiac Disease is considered a disability.

Ordinal Spoon Scale Assessment

Jul. 27th, 2025 11:59 pm
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[personal profile] genderjumper

Back in March, I started a 90-day course of an SSRI as a response to suspected Long COVID. Before I started it, I developed an ordinal chart for tracking my own "spoons" in categories that seemed important to me. I recorded my ranges under a variety of conditions (lows were mostly based on peak burnout last November, highs were mostly based on hypomanic cycles pre-COVID) and promptly forgot about it.

But I think that's a good thing. I am now 30+ days past the SSRI course and nearly a month out from my trip to NYC. And using this chart helps me focus on where things are significantly better, minutely better, or unchanged, so I can report that to my doctor. Here's a summary of the categories and my recent changes:

Push
How well can I accomplish a short but intensive physical activity, like loading a refrigerator on a dolly?
Shows some of the greatest improvement but not consistency. Still room to grow, but I'm no longer terrified that I couldn't respond to an emergency without a severe and immediate crash.

Endurance
How long can I be physically active without needing rest?
Moderate improvement, plenty of room for more.

Focus
How long can I focus on one project without needing rest?
Surprisingly no movement. "Follow-through requires intention" is still my high and "Minor difficulties with everyday tasks" is still my low.

Executive Function
How well can I make decisions and plan ahead?
Moderate improvement, room for more.

Emotional
How intense and manageable are my feelings?
No real change, but probably the one that least needed improvement. (So grateful for all the work I did on this as an adolescent.)

Transitions
How well do I navigate "transition time", i.e. shifting focus to a new activity, with or without warning?
Slight improvement, with lots of room to grow. (This one has been one of the greatest shocks to my way of life over the past year; I never used to have to think about transition time unless it was toward something unpleasant.)

Recovery (Waves)
If I expend a lot of energy, then rest, can I get some back -- i.e. a "second wave"?
Slight improvement, but was and remains my worst category. (What I do now is starting to look more like pacing, but I think there's a lot to learn and practice -- I don't think the doctor needs to hear it, but I should write about it more.)

Nutrition
Do I still need to eat a lot of protein every 3 hours (with snacks in-between) and what happens if I don't?
Moderate improvement from March, but a world better than last November the past 10+ years thanks to introducing a small but steady source of sugar into my diet. (This one probably warrants some backstory as well.)

Sleep
How sensitive am I to getting less than x number of hours (x varies, from less than 8 to 12; if you think that's annoying, before my 40s I could reliably function on 6 hours of sleep without consequences, and before grad school 4).
From one of my worst categories to my best and the primary reason I sometimes wonder if I'm still hypomanic (even though the timing is all wrong). I will never turn away a 10-12 hour sleep if the chance arises, but it's getting harder to fall asleep yet waking up isn't getting commensurately more difficult.

So I guess I'll be talking to the doctor about focus and transition time, as well as reporting that nutritional and sleep adjustments seem to be helping.

Kind Acts of Randomness

Jul. 27th, 2025 02:54 am
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[personal profile] genderjumper
A trans family in my extended community are about to GTFO Austin (lucky them!) and held a sendoff party today. One of my dear ones is also very dear to them, but disabled and geographically isolated from both them and me, so I asked if I could pick her up and drive her down. She gladly accepted.



On the drive home, I recorded audio of a potential essay called, "How to Break a Resilient Heart" (or something similar) that felt a bit cathartic to get out of my head. It was a mournful how-to written from the perspective of the hurtiest relationship end I've ever experienced, which haunts me 8 years on. I also sang through a couple of albums, playing with my pitch and range.

I haven't felt this creative in a long time.
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